<p> This Interstitial Cystitis Network blog is a new project of the Mail Order Division. We will be posting industry news, IC resources, feature articles, support resources and much more! - Jill O. </p> <br /> <span style="font-weight: bold;">We do appreciate comments about the videos but please note that this area of our webstore is not connected with our support forums. They are located at </span><a title="IC Network Support Forums" target="_blank" href="http://www.ic-network.com/forum/" style="font-weight: bold;">http://www.ic-network.com/forum/</a><span style="font-weight: bold;">. You may view the many topics and over 66,000 threads about IC-related issues there and join our over 50,000 members to post questions and answers of your own! </span> Mon, 05 Dec 2011 19:03:32 EST http://www.icnsales.com/xcms.php?xcmscategoryid=4 Blog Tue, 22 Mar 2011 15:23:00 -0400 I just received this email from an ICN forum member! She reminded me and hopefully you that you can help advance the IC research movement and make a little $$ on the side by participating in some very easy studies. http://www.icnsales.com/xcms_entry.php?xcmsentryid=58&xcmsrss=1 Blog Wed, 09 Mar 2011 14:33:00 -0500 While it's commonly understood that a IC/BPS is probably a syndrome of conditions. Think about it. Why do some patients have Hunner's ulcers and others don't. Why do some patients have vulvodynia or IBS while others don't. Why do some patients just have frequency while others have pain? We're still trying to figure it out.. but one piece of the puzzle for SOME patients is what this study is talking about... "central sensitivity syndrome." I think that this explains why so many IC patients have other related conditions like IBS, vulvodynia, etc. I do think this is at the root of my personal health struggles. I am the sensitivity queen.. GRRRR!!! - Jill http://www.icnsales.com/xcms_entry.php?xcmsentryid=57&xcmsrss=1 Blog Wed, 09 Mar 2011 14:07:00 -0500 Intravesical hyaluronic acid, aka cystistat in Canada, is nothing new to the IC world. It's been available for years though it is not FDA approved in the USA for the treatment of IC due to fairly poor clinical trials. In this study, however, researchers in France report that they have seen an approx. 52% response rate in IC patients. Not bad actually! - Jill O. http://www.icnsales.com/xcms_entry.php?xcmsentryid=56&xcmsrss=1 Blog Wed, 09 Mar 2011 13:53:00 -0500 IC Nerd Alert! Here's another interesting study by Susan Keay, the reearcher who discovered the APF factor in the urine of IC patients. She and her colleagues have determined that they can inhibit the effect of apf by using an apf antagonist. Interesting stuff. Doncha just love science! - Jill http://www.icnsales.com/xcms_entry.php?xcmsentryid=55&xcmsrss=1 Blog Sun, 06 Mar 2011 00:42:00 -0500 Study seeks to understand pathology of the IC bladder wall... caveolin proteins found in excess quantities. http://www.icnsales.com/xcms_entry.php?xcmsentryid=54&xcmsrss=1 Blog Sun, 06 Mar 2011 00:39:00 -0500 Researcher in Italy shares results of hyperbaric oxygen therapy for the treatment of IC. http://www.icnsales.com/xcms_entry.php?xcmsentryid=53&xcmsrss=1 Blog Sun, 06 Mar 2011 00:38:00 -0500 UCLA Research Study Seeks Patients. http://www.icnsales.com/xcms_entry.php?xcmsentryid=52&xcmsrss=1 Blog Sun, 06 Mar 2011 00:37:00 -0500 Research study seeking pregnant vulvodynia patients. http://www.icnsales.com/xcms_entry.php?xcmsentryid=51&xcmsrss=1 Blog Thu, 15 Apr 2010 01:16:00 -0400 Hot News! - The Social Security Administration is "adding interstitial cystitis as a diagnostic category with the impairment code 5950 for completion of pertinent items" on various SSA forms and reports. http://www.icnsales.com/xcms_entry.php?xcmsentryid=42&xcmsrss=1 Blog Wed, 14 Apr 2010 23:06:00 -0400 Yay!! Just finished the latest ICN E-Zine for March 2010! Enjoy! http://www.icnsales.com/xcms_entry.php?xcmsentryid=39&xcmsrss=1