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Interstitial Cystitis Network
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A New Approach to IC - DOWNLOAD VERSION
Perhaps the biggest breakthrough in the diagnosis and treatment of IC is a new proposal by Dan Shoskes (Cleveland Clinic), Curtis Nickel (Queens University) and Ray Rackley (Cleveland Clinic) to divide IC into six subtypes that will provide a new, more customized and far more flexible treatment plan. This represents a significant progression in the medical care of IC patients and is a must read for patients and providers.
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IC Optimist - Summer 2011
This summer issue of the IC Optimist is traditionally dedicated to sharing the latest IC research presented at the AUA conference and this year we're focusing on new, exciting potential treatments currently under study. Honey, for example, was found not only to have a beneficial effect on the bladder wall but another study found that sugar, when added to an antibiotic, helped to clear up more stubborn infections. We've interviewed Dr. Eliot Lander about his stem cell therapy research. September is IC Awareness Month and we've included a kit that you can use from home to help spread awareness that IC is real and treatable. Two IC patients share lovely stories about adoption and creating an IC friendly birthday celebration. Bev Laumann shares two flavorful fish recipes. Also included are self help tips and the latest consumer alerts.
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ICN Professional Subscription
Would you like to list your urology, physical therapy, dietitian, counseling or coaching services on the IC Network and also receive the best educational materials available today for IC and bladder pain patients?? The IC Network Professional Subscription facilitates both!
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ICN Special Report - Medical Records File
The ICN Medical Records File will help you better manage your medical care. From tracking your progress, planning your appointments and keeping records of your tests and treatments, we're sure that you'll find this issue very helpful to help you organize these important details.
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ICN Special Report - Medical Records File DOWNLOAD VERSION
This Medical Records File will help you better manage your medical care. From tracking your progress, planning your appointments and keeping records of your tests and treatments, we're sure that you'll find this issue very helpful to help you organize these important details.
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My Mom Has Interstitial Cystitis - A Painful Bladder Story
A book to help children understand why their parent is ill. Targeted for young children in elementary school, it explains that IC is a wounded bladder, how the bladder works, why mom or dad has to go to the doctor (and that doctors help) doctor visits, medication safety and how they can help around the house. Includes a great word hunt at the end!
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My Mom Has Interstitial Cystitis - A Painful Bladder Story by EMAIL
A book to help children understand why their parent is ill. Targeted for young children in elementary school, it explains that IC is a wounded bladder, how the bladder works, why mom or dad has to go to the doctor (and that doctors help) doctor visits, medication safety and how they can help around the house. Includes a great word hunt at the end!
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Surviving IC Catastrophes - EMAIL DOWNLOAD VERSION
From finding a restroom to going out to dinner only to discover that the restaurant to losing your doctor, IC patients have realistic worries. You might be concerned about running out of medications and/or surviving traveling. The great news is that with some planning, you can overcome and/or prevent these and MORE potential IC catastrophes. This article provides some great ideas that will ease your anxiety and give you a reason to get out of the house and go enjoy life!
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The International IC Experience by EMAIL
Ever wonder what an IC patient faces in other countries?? IC patients from Canada, South Africa, Croatia, Sweden, Japan, New Zealand, Germany, France and the Netherlands speak out on a wide variety of topics, including diagnosis, treatment, self-help, pain care and more!
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IC Optimist - Fall 2011
If you were considering having a medical device, would you want to know what the potential risks as well as benefits are? Patients considering InterStim might be surprised to learn that 500 adverse event reports can be found in the FDA database, including 22 fatality reports. In our lead story, we explore the issues and suggest that an independent review panel to investigate. With the holiday season fast approaching, we share our favorite IC holiday recipes, a new cookbook AND Stacey Shannon offers a fabulous article on money saving tips that will still allow you to enjoy a memorable and joyful holiday season. Shelia Ricks shares her disability success story and Nicole McDonald offers a unique insight into IC. Lastly, health educator Tom Robinson reminds us of the most important coping strategy of all, self-compassion!
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IC Optimist - Fall 2011 - PDF FILE DOWNLOAD - INSTANT ACCESS
If you were considering having a medical device, would you want to know what the potential risks as well as benefits are? Patients considering InterStim might be surprised to learn that 500 adverse event reports can be found in the FDA database, including 22 fatality reports. In our lead story, we explore the issues and suggest that an independent review panel to investigate. With the holiday season fast approaching, we share our favorite IC holiday recipes, a new cookbook AND Stacey Shannon offers a fabulous article on money saving tips that will still allow you to enjoy a memorable and joyful holiday season. Shelia Ricks shares her disability success story and Nicole McDonald offers a unique insight into IC. Lastly, health educator Tom Robinson reminds us of the most important coping strategy of all, self-compassion!
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ICN BASIC Email Subscription
Our most economical subscription, our world wide ICN E-MAIL subscribers receive the the quarterly ICN Magazine the "IC Optimist," plus our informational IC Handout and Medical Records File.
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Wine, Beer and Spirits - Finding IC Friendly Products - DOWNLOAD VERSION
There is no doubt that alcohol can trigger bladder symptoms in patients with IC. Ninety-four percent of 535 patients responding to the ICN’s IC and Alcohol survey (2009/2010) reported that their frequency, urgency or pelvic pain did increase when drinking various alcoholic beverages but there was a substantial difference in the types of alcohols consumed and the reactions they provoked. We share the results including listings of the wines, beers and alcohols that were the most bladder friendly! Use this to help you select a wine, beer or cocktail!
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IC Optimist - Summer 2011 - PDF FILE DOWNLOAD
This summer issue of the IC Optimist is traditionally dedicated to sharing the latest IC research presented at the AUA conference and this year we're focusing on new, exciting potential treatments currently under study. Honey, for example, was found not only to have a beneficial effect on the bladder wall but another study found that sugar, when added to an antibiotic, helped to clear up more stubborn infections. We've interviewed Dr. Eliot Lander about his stem cell therapy research. September is IC Awareness Month and we've included a kit that you can use from home to help spread awareness that IC is real and treatable. Two IC patients share lovely stories about adoption and creating an IC friendly birthday celebration. Bev Laumann shares two flavorful fish recipes. Also included are self help tips and the latest consumer alerts.
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IC Optimist - Summer/Fall 2010 Edition
The Summer/Fall 2010 issue of the IC Optimist is likely one of the most controversial issues we've released with two stories on medicinal marijuana, how research has shown that it helps neurologic pain and new research which suggests that it could be a new, possible bladder instillation for IC. Whether you are pro or con the use of medicinal marijuana, there's no denying the research is compelling. We've offered the latest IC research news from the 2010 AUA Meeting. The ICN survey on alcohol and IC revealed that straight alcohol was better tolerated than wines and beer. You'll also find a compelling story of a teenager with IC, how patients fight flares with on-line games and many new summer drinks from our recently completed summer drink contest.
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ICN BASIC RENEWAL
Has your Silver, Gold or Basic Subscription expired? Renew it here! Please note that we did combine our silver and gold subscriptions into one "basic" email subscription in 2009.
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