Blog

IC Patient Makes $225 Participating in IC Study
Category: Blog
Posted: 03/22/2011 03:23:00 PM
Views: 4667
Comments: 0
I just received this email from an ICN forum member! She reminded me and hopefully you that you can help advance the IC research movement and make a little $$ on the side by participating in some very easy studies.

Is IC BPS part of a central sensitivity syndrome?
Category: Blog
Posted: 03/09/2011 02:33:00 PM
Views: 2569
Comments: 1
While it's commonly understood that a IC/BPS is probably a syndrome of conditions. Think about it. Why do some patients have Hunner's ulcers and others don't. Why do some patients have vulvodynia or IBS while others don't. Why do some patients just have frequency while others have pain? We're still trying to figure it out.. but one piece of the puzzle for SOME patients is what this study is talking about... "central sensitivity syndrome." I think that this explains why so many IC patients have other related conditions like IBS, vulvodynia, etc. I do think this is at the root of my personal health struggles. I am the sensitivity queen.. GRRRR!!! - Jill

Intravesical hyaluronic acid study for interstitial cystitis/bladder pain syndrome in France Shows Success
Category: Blog
Posted: 03/09/2011 02:07:00 PM
Views: 6608
Comments: 2
Intravesical hyaluronic acid, aka cystistat in Canada, is nothing new to the IC world. It's been available for years though it is not FDA approved in the USA for the treatment of IC due to fairly poor clinical trials. In this study, however, researchers in France report that they have seen an approx. 52% response rate in IC patients. Not bad actually! - Jill O.

More Promising Interstitial Cystitis Research by Susan Keay
Category: Blog
Posted: 03/09/2011 01:53:00 PM
Views: 13815
Comments: 0
IC Nerd Alert! Here's another interesting study by Susan Keay, the reearcher who discovered the APF factor in the urine of IC patients. She and her colleagues have determined that they can inhibit the effect of apf by using an apf antagonist. Interesting stuff. Doncha just love science! - Jill

Caveolins May Participate in IC Pathology
Category: Blog
Posted: 03/06/2011 12:42:00 AM
Views: 400
Comments: 0
Study seeks to understand pathology of the IC bladder wall... caveolin proteins found in excess quantities.

Hyperbaric Oxygen Therapy For Pelvic Pain
Category: Blog
Posted: 03/06/2011 12:39:00 AM
Views: 1032
Comments: 0
Researcher in Italy shares results of hyperbaric oxygen therapy for the treatment of IC.

Vulvodynia Nerve Block Study
Category: Blog
Posted: 03/06/2011 12:38:00 AM
Views: 252
Comments: 0
UCLA Research Study Seeks Patients.

Pregnant with vulvar pain?
Category: Blog
Posted: 03/06/2011 12:37:00 AM
Views: 206
Comments: 0
Research study seeking pregnant vulvodynia patients.

Hot News! - The Social Security Administration gives IC credibility.
Category: Blog
Posted: 04/15/2010 01:16:00 AM
Views: 8685
Comments: 17
Hot News! - The Social Security Administration is "adding interstitial cystitis as a diagnostic category with the impairment code 5950 for completion of pertinent items" on various SSA forms and reports.

Yay!! Just finished the latest ICN E-Zine for March 2010! Enjoy!
Category: Blog
Posted: 04/14/2010 11:06:00 PM
Views: 1772
Comments: 0
Yay!! Just finished the latest ICN E-Zine for March 2010! Enjoy!

Our latest newsletter, February 2010, is now available! Enjoy!
Category: Blog
Posted: 04/13/2010 11:06:00 PM
Views: 4627
Comments: 2
Our latest newsletter, February 2010, is now available! Enjoy!

January 2010 ICN Free Newsletter Link
Category: Blog
Posted: 04/13/2010 11:04:00 PM
Views: 3929
Comments: 0
The January 2010 ICN free E-Newsletter is now available for your review.